Care Data - Confidential Records and National Data Opt-out

your care data

Your Confidential Records

You can be assured that your medical records are safe with Stockwood Medical Practice.  We will only share data that identifies you under the following circumstances:

  • With other health care professionals (hospital or community staff) as part of an agreed plan of treatment
  • With your explicit consent, e.g. for participation in research studies
  • In circumstances where it is in the interests of your health and you are not able to give consent, e.g. if you are unconscious
  • Where we are obliged to divulge information under the Health & Social Care Act 2012, e.g. in the case of a national emergency or pandemic
  • Where we are required to do so for health service planning purposes and you have not explicitly opted out of having your data shared (see below)
  • Please see our Privacy Notice for detailed information

Our strict rules about confidentiality mean that we will not discuss your medical affairs even with your close family unless you give us permission to do so.  This includes details of appointments you have made.  If you would like your partner, parent, son/daughter or carer to be able to speak to us on your behalf, you must tell us beforehand.  Please ask our Reception Team for a consent form if you require an ongoing arrangement for sharing consent.   You can withdraw your consent at any time.

Information about your health and care helps the NHS to improve your individual care, speed up diagnosis, plan your local services and research new treatments.

You have the right to control how medical information about you is shared, disseminated or sold, for purposes other than your direct medical care – so called secondary uses (or purposes).

Secondary uses include projects involved in risk stratification, population health management, national clinical audits, research, healthcare planning, commissioning of healthcare services by CCGs, commercial and even political uses. You can control your personal confidential information by opting out of data sharing.


There are 2 types of data sharing.

Type 1 Opt Out

  • What is it?

type 1 opt out prevents information being shared outside a GP practice for purposes other than direct care.

  • Who do you notify of your decision to opt out

Please print and sign an opt out form and either bring the original to the practice for processing or take a photo of it and email it to us at stockwood.medicalcentre.nhs.net so that we can update your data sharing preferences.

This collection will start on 1 July 2021 so if you do not want your data to be shared with NHS Digital please register your Type 1 Opt-out with your GP practice by 23 June 2021.

If you register a Type 1 Opt-out after this collection has started, no more of your data will be shared with us. We will however still hold the patient data which was shared with us before you registered the Type 1 Opt-out.

If you do not want NHS Digital to share your identifiable patient data with anyone else for purposes beyond your own care, then you can also register a National Data Opt-out.


Type 2 Opt Out – now known as National Data Opt-out

  • What is it?

type 2 opt out/National Data Opt-out prevents information being shared outside NHS Digital for purposes beyond the individual’s direct care.  This link will take you to full current information regarding these opt-outs

  • Who do you notify of your decision to opt out

Type 2 Opt outs are arranged by NHS Digital.  If you are aged 13 or older you can go to Make your choice about sharing data from your health records – NHS (www.nhs.uk) and opt out online.



Other ways to make a choice

You can also make or change a choice for:

  • yourself by phone, email or post
  • someone else by email or post

NHS Digital Contact Centre phone number: 0300 303 5678 – Monday to Friday, 9am to 5pm (excluding bank holidays).

If you’re a parent or legal guardian and you want to opt your children out, you must complete the opt-out form.

Once you’ve completed the form, you can email it to the Contact Centre – enquiries@nhsdigital.nhs.uk

Alternatively, you can post the form to:

National Data Opt Out
Contact Centre
NHS Digital
HM Government
7 and 8 Wellington Place
Leeds
LS1 4AP


What is Stockwood Medical Practice doing to inform patients of this change?

To make sure that as many patients as possible know about the scheme and have the opportunity to make a choice, Stockwood Medical Practice are taking the following steps:

  • All staff fully aware to support you with any queries you may have
  • Information available in the practice
  • Information on website and links above to NHS websites for further information


Summary Care Record (SCR)

Your Summary Care Record is different to the above sharing for secondary uses.  Your SCR is used to assist in provision of care for you.  Access to SCR information means that care in other settings is safer, reducing the risk of prescribing errors.  It also helps avoid delays to urgent care.

At a minimum, the SCR holds important information about;

  • current medication
  • allergies and details of any previous bad reactions to medicines
  • the name, address, date of birth and NHS number of the patient

Additional Information in the SCR, such as details of long-term conditions, significant medical history, or specific communications needs, is now included by default for patients with an SCR, unless they have previously told the NHS that they did not want this information to be shared.  There will also be a temporary change to include COVID-19 specific codes in relation to suspected, confirmed, Shielded Patient List and other COVID-19 related information within the Additional Information.

All of our patients who have not chosen to opt out have a Summary Care Record that can be accessed, with the patient’s consent, by hospital and out of hours staff.

You may choose to opt out of having a Summary Care Record.  The websites below will help you to decide on the risks and benefits.

https://digital.nhs.uk/services/summary-care-records-scr

If you would like to opt out, please print off and complete the following consent form and return it to the surgery. 

https://digital.nhs.uk/services/summary-care-records-scr/scr-patient-consent-preference-form



Your patient data matters to us!

Following on from recent news and social media speculation about NHS Digital and data sharing.  A number of posts are circulating on social media about the national data opt-out, containing incorrect information.  We thought it may be helpful to provide some key information and links to help you with your decision making and if you might be now thinking of opting out of sharing any of your data - as it's your choice.

Understanding the national data opt-out - NHS Digital

Have a look at our Privacy Notice which explain what we do with your data and who we share it with.

We do not:

  • Sell health and care data
  • Share data with marketing and insurance companies

Please see the ICO web page for more information about your rights.

If you require any further information then please do not hesitate to contact our Data Protection Officer, Kelly@almc.co.uk

You have a choice

If you are happy for your information to be used in this way you do not have to do anything. If you have any concerns or wish to prevent this from happening, please speak to practice staff or download the opt out form above, complete it and return it to the practice. 

Patient Handout



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